Apr 17, 2013 at 09:17 PM
It took me years to find somewhere in the Country that could help me with A/S. I would have travelled anywhere and thankfully ended up at the The Min. That was 1984. This wonderful hospital has been my life blood and a home base for treatment ever since. I am so very fortunate to still receive treatment at The Min as I know I am one of the lucky ones to still be under it's care. I know I can get the very best treatment here in it's wonderful historical original location. It also leads the world in research, something that at the moment that surprisingly doesn't seem to get much recognition.
If it is absorbed in any shape into another hospital it will become just another unit in another hospital in another town with little identity and subject to all the politics of a NHS that is under threat as it continues to change.
We are told that hospitals of excellence are the way forward for The NHS so it beggars belief why this hospital is under threat. It should be protected at all costs.
Apr 19, 2013 at 10:10 PM
l have been treated as a in patient and out patient at The Min for over 20 years to the highest standards by past and present consultants .
This Hospital is a centre of excellence in Rheumatic Conditions and the only hospital in the UK that can offer what it does.
The Government should be doing all it can to protect this hospital in its present location to continue to deliver the care to people like myself that live with a chronic condition Ankylosing Spondylitis .
Without the care and treatment l have received from this hospital l would not be here today.
l travel from Bromley (Kent) to this hospital and ever mile is worth the journey for the 1st class care and treatment you get by all the staff at this hospital
PsAZZ Group, Bath:
Apr 23, 2013 at 06:53 PM
I am writing on behalf of a psoriatic arthritis support group called 'PsAZZ' made up, primarily, of patients treated at The Min. We were both shocked and saddened when we first heard that this wonderful resource is under threat. It is unbelieveable that Bath would not want to help protect this important part of it's heritage and help it continue what it was built to provide.
Group members feel that, by coming to this center of excellence, they have had a level of care, attention and understanding that is second to none and felt reasssured by the team of highly skilled and experienced consultants and not 'lost' with the system.
We have written an open letter to the RNHRD Foundation Trust but they have not answered, which is most disappointing. Surely the patient views should be seen, heard and taken into consideration.
It would not just be a shame to loose The Min - it would be a tragedy and a waste.
Apr 24, 2013 at 11:55 AM
I attended the AS course December 2012, doing a two week live in physiotherapy course. Before doing the course my life revolved around clock watching, waiting for my next round of medication. I was stiff, I didn't exercise and my fatigue was constant. I have young child and I often lay in bed whilst I watched him play. I seldom took him out as it was difficult to walk.
This course told me how to fight my AS head on, using gentle exercises, stretches and techniques drawn from yoga, pilates and hydrotherapy. We were taught about medications, how to understand our X-rays, tackle fatigue, occupational therapy and deal with our emotional well-being.
For me I came back a new person, my movement range improved and on whole I improved by an amazing 77%. My life is still of someone who suffers with Ankylosing spondylitis, but I know now how tackle it when it becomes problematic. I am still unable to do the things that I used to do pre AS, but I have got much more quality of life back and for me that enables me to do more with my young son. We all went swimming as a family recently, before this course I never could have dreamt of doing this. I now exercise doing gentle stretches almost everyday. I also have reduced my morphine medication down to half of what I was on pre the course. The course put me on the bottom rung of the ladder for making me in control of my AS. If this hospital were to close or this facility to be withdrawn it would ruin my chance of having a better quality of life , people who rely on this hospital and future generations of AS sufferers
Apr 28, 2013 at 09:07 PM
..... the treatment I have received at RNHRD has improved my quality of life tremendously and I cannot speak highly enough of the unique combination of staff expertise,facilities and location that it provides.
I feel that it is imperative that this facility remains operational far into the future so that others can benefit as I have..........to the betterment of the health of the nation......
May 03, 2013 at 12:39 PM
I felt I was drowning and the Min was my life jacket, I would have thrown in the towel if I hadn't of been sent there.
May 03, 2013 at 12:39 PM
As part of my role as NASS Director, I always try to pop-in to the AS course and speak to patients whenever I am in Bath. I also obviously get to speak to many NASS members who have spent time at the RNHRD to help them manage their AS. People tell me that the AS course at the RNHRD has been 'life changing'. They cannot praise it enough. I also see all the hard work put in both on the course and behind the scenes by Dr Raj Sengupta and his excellent team. There is something uniquely special about this place. It needs to be preserved. Let's not look back in a few years' time and wish we'd done more to save the Min.
May 06, 2013 at 12:21 PM
I have been attending The Min since the middle eighties and it has literally saved my life I had never met anyone with AS and felt so alone and isolated the course was then 3 weeks and with the care and support of the staff I came out with a completely different outlook I was much more positive I have been going on the courses when ever its been possible and am still learning from other patients and the staff coping mechanisms if this centre of excellence closes where are the next generation supposed to go are they going to be as I was in the eighties alone with no information we are supposed to be going forward not back please save the rnhrd
May 06, 2013 at 10:51 PM
I'm very lucky that I moved back to Bath. When i was diagnosed with Sarcoidosis 4 years ago , i had to see 5 different consultants and it was the Doctor at The Min who took charge of me and my condition. I've always had excellent treatment and great care taken of me here. It is a very important hospital for lots of reasons, please help save it.
May 07, 2013 at 09:39 PM
The Min is an extraordinary and invaluable place for all of us who suffer from the intractible and hellish reality that is AS.
There is no cure. And, having travelled the country and seen a broad range of Consultants and Physios, I can say hand on heart, that there is nowhere else in the UK where the expertise, the insight and the level of care comes anywhere close.
This mightn't marry up statistically, nor make sense in any 2-dimensional target-driven culture. But the thing about AS is that there aren't black and white targets. There is a long and lonely road, a gruelling life of tackling chronic pain head on every day.
There is extraordinary joy and crucial respite in rare places like the Min - places that really understand, places that are world-class in the level of care they provide (regardless of means) and places that connect together patients and experts to build confidence and community at the cutting edge.
To do anything but build on the pride we ought be taking in the Min would be as ruthless as it is nonsensical.
Jul 13, 2013 at 10:33 AM
As a National centre for pain management the Min is a uniquely situated. It specialises in the treatment and research of Complex Regional Pain Syndrome and is a lifeline to patients like myself. Along with other patients I have experienced the ignorance of clinical staff in other hospitals. Living with a severe pain condition can consume your life but the staff at the Min through their amazing expertise have transformed my life. I have the skills to face the day despite my pain and now live a full and meaningful life. I feel privileged to have had this treatment and know that without it the quality of my life would have been extremely poor. The research undertaken in the condition is international and essential. If we close such an outstanding service for short sighted policy we are denying patients the very best of care. By giving patients the skills to cope we are statistically less dependent on healthcare and easily save the NHS the costs of keeping the Min open.
Nov 01, 2013 at 10:41 AM
As an occasional outpatient of the Min I cannot praise too highly the kindness and dedication of all the staff I have come in contact with. There is a culture running through the hospital of providing excellence combined with caring. Unfortunately my experiences at the RUH have been very different and distressing, and I wholeheartedly support any move to keep the important centre of excellence that is The Min open and running.
Jan 15, 2014 at 09:46 PM
This is a landmark institution. Central and easily accessible. It is Bath. Save it.